Sunday, October 30, 2016

Meet Seedlings!

When Avery was about five months old, and we were just dipping our feet into the world of VI parenting, our TVI (teacher of the visually-impaired) suggested we visit the Children's Low Vision Resource Center in our area.  I will never forget that day, because it was one of the first doses of reality I received with regard to having a visually-impaired child and how different parenting would be for us.  I was still getting used to the fact that Avery was "different," and this place was overwhelming, scary and the day was extremely emotional.  However, it was the first time I realized continuing to be afraid of the life we were facing was just going to inhibit us from pushing Avery to her fullest.  We had been slowly learning about VI services up until then, but there were so many more resources, services and tools available to her, even as an infant.  All of these were things that would help her to be safe, functional and independent in this big, sighted world.  My eyes were opened (pun intended) big time that day.  While I was in tears for most of the visit, it definitely hit me that this is reality, and if I want to give Avery every opportunity that I can, this was the first step.

On our way out, the director of the center gave us a care package--some DVDs, a lot of pamphlets, ways to connect with other families, and even a VI/Blind "goody bag," with the phrase, "Hooray for Braille!" on it, and knowing me, I'm sure I sarcastically was thinking, 'yay - welcome to the party!'  The bag was from a place called Seedlings.  To be honest, I didn't pay too much attention to the source of the goodies at the time.  I definitely appreciated it as I went through the items - a baby book in Braille, a Braille alphabet book mark, information about Seedlings.  And my favorite: those alphabet magnets that every kid has on their fridge, only these had Braille on them.  The idea of learning Braille seemed so far off, and one aspect that I could still realistically lock away and not have to think about for awhile.  We were told that the alphabet magnets were hard to come by, so we did put those on our dishwasher, and tucked the rest away for "later."  In the months and year following, I would randomly hear about Seedlings here and there.  Early Intervention would bring new books for Avery and their label was on the back, I heard of their Book Angel Program, and signed Avery up for her free Braille book.  I was looking for Christmas gift ideas for her, and was directed to Seedlings for ideas.  We were urged to start running her fingers across Braille in the few books we had.  But I still kept the idea of Braille at a distance. 

Fast-forward about five years, and my relationship with Seedlings has done a 180.  Once Avery started pre-K, I was doing research on new ways to teach her, and I again stumbled upon Seedlings and learned more about the enormous impact they were making on children like mine.  This small, grassroots organization has an incredible backstory.  The concept was imagined by Debra Bonde in 1984, when she discovered how inaccessible and expensive Braille books were.  She knew the value of literacy and reading and it should start at a young age, so the thought of blind and VI children being denied this was not acceptable to her.  She started Seedlings in her basement, with a mission of making Braille books accessible and affordable for blind and VI children, as well as blind caregivers.  Her first year, she produced 221 books basically by her own hands. Today, Seedlings (a 501(c)3 non-profit) has produced nearly 500,000 Braille books, and gives more than half of them away for free.  Before Deb started, most Braille books cost upwards of $100, but Seedlings is able to sell their books for about $10 on average.  Their mission of increasing the literacy rate among blind and visually impaired children so they can grow up to be independent adults has proved successful year after year.  

I've had the privilege and honor of serving on Seedling's Board for the last year and a half, and it has been one of the most rewarding experiences since having Avery.  I've literally fell in love with this organization and how an idea to give every child the same access to literacy has turned into so much more.  Because when you think about it, I can take my sighted child to the bookstore or library, and she can pick any book she wants, and that is definitely not the case for my VI child.  While Avery still has some sight, that may not always be the case, and Seedlings allows her to have access to the same books her sister does.  It's a little luxury that most people take for granted.  So, looking back to that day when I first heard of Seedlings to now, I hope they know how much I value what they are doing.  Since Avery could turn pages, reading is pretty much her favorite thing to do.  She loves to flip through book after book, whether telling her own version of the story, or having us read to her.  And now that she's learning Braille, everything is coming together for her.  Seedlings has ensured normalcy in a piece of our lives, and for that, I am forever grateful.  And for me, it has turned something scary into something positive.

The purpose of me sharing this is because starting today, Seedlings is holding its first online auction fundraiser.  They've been able to get some pretty awesome items up for bidding, such as four 1-day Hopper passes to Disney World, an Apple iPad with keyboard, Lions, Tigers and Wings game tickets, meet-and-greets, and many different types of gift cards of varying values.  Every $10 raised makes another Braille book possible!  If you have a moment, please browse the online auction, now through November 14th, and hopefully you'll find something you need (i.e. lots of Christmas gift ideas that will also serve a great cause).  You can click here to get there:  Online Auction (www.biddingforgood.com/braillebooks)

Also, we have learned that the Children's Low Vision Resource Center in Royal Oak needs our help to keep its doors open.  This was the place that first gave us our care package, information and resources about the VI world.  These are offered to families at no cost, but the center is in need of help to keep this valuable program going for kids in our area.  I'll be sharing more info on how to help!  

As always, thank you for reading, and following along on our story!
Ann